Jonny May

Will it ever stop? I am scheduled for surgery on Friday which should not be easy or fun. Now we’ve discovered a rather problematic lesion in my left femur that will need stabilization so it won’t break. We were advised to get this done sooner rather than later. The actual procedure from the surgeon’s standpoint (same guy who did my shoulder) should be easier than the last one, however, it will be more painful for me. A rather large titanium rod will be placed in the bone. I’m not sure when I’ll be back on my feet yet. Hopefully we’ll know an estimate soon (it shouldn’t be too long).

Lately I just finished up another radiation block that included 3 places. One on the top of my head slightly to the left, another on my cheek bone, and on my operated-on shoulder. It was a little more involved than my last bit of radiation, but I got through it just fine.

We are desperately awaiting the moment I can return to receiving more systematic care. I need to get on another clinical trial ASAP. The way I see things now is kind of like putting out wildfires that keep popping up, but we can’t afford to do that for much longer. So until we finish all of the surgeries (still have another area of concern as my original tumor has returned in the soft tissue of my left leg) and radiations, we can’t move on with finding an appropriate trial. So we hope to have slow or no growth in other tumors while we get the immediate problem ones under control.

Thank you all for your continued support, you’ve all been so great to me and my family. Hopefully we can find a way to juggle all of these health issues and plan a wedding at the same time, it sure will be a challenge.

Jon is the handsome guy on the left. The other guy is Jeter, who I’m told plays baseball or something.

Yea it’s a little blurry, but it’s still a guy who could be on the cover of GQ (and A-Rod).

Jon meets the former Geico caveman (aka Mr. Damon)

All joking aside, the Yankees (both the players and the organization) were great to our family. Jon was able to live out a sports fan’s dream of being able to sit in the Yankee’s dugout and talk with the players. On behalf of my family I would like to thank everyone who helped make this possible for Jon.

Jon should be back in Ohio later today. I’m sure when he is feeling up to it he’ll have some more on his travels and updates on his next set of treatment.